THE HOLLIES SURGERY
Important : Information about the personal data we hold about you
The NHS is changing how patient information is stored and shared in England, so it can provide better care for patients.
There are currently three different data sharing programmes that affect an individual’s primary care record (that’s the data that your GP holds about you on their clinical database).
These are all run separately, have different benefits for the patient and have different rules and regulations around what data is shared, how it is shared and who can access it.
1. Summary care record. (SCR)
IMPORTANT: SCR will go LIVE at this practice on September 12th 2014
A Summary Care Record is an electronic record which contains information about the medicines you take, allergies you suffer from and any bad reactions to medicines you have had.
Under the SCR scheme this summary data is uploaded from our database onto the national NHS records database every time some of the information in it changes.
Having this information stored in one place makes it easier for healthcare staff to treat you in an emergency, when your GP practice is closed or when you are away from home and need to visit a GP where you are staying.
Even if you have consented to allow your summary care record to be uploaded, no other healthcare professional will be able to access this information without asking you first (unless you are unconscious and the doctor or nurse believes it is in your best interest).
What happens if I do nothing? You will be assumed to have provided ‘implied’ consent and your SCR will be uploaded. However you will still be asked for your consent every time a doctor or nurse wants to view it.
If you want to stop your SCR being uploaded you should complete our data sharing preferences form. You can change your mind later and opt-in again.
More information is available at http://www.nhscarerecords.nhs.uk/
The Hollies will be joining the Summary Care Record programme in September 2014 and we will post notices in the surgery and on the website to give patients reasonable notice of the start date.
2. Local Data Sharing
This allows local clinicians such as District Nurses to see certain parts of your medical record. Unlike with SCR though, your data doesn’t actually ‘go’ anywhere. Under these schemes the doctors/nurses at other services are allowed secure access to your record on our database. It can make a huge difference to their ability to look after you and save lots of their time.
Even if you have consented to allow local data sharing, a doctor or nurse will still ask your permission every time they want to access your record.
Each service has a separate and specific legal agreement detailing what access they can have and each one is signed by the doctors at The Hollies.
What happens if I do nothing? You will be assumed to have provided ‘implied’ consent so if you are being treated by one of the services with whom we have signed an agreement, the clinician will be prompted to ask for your consent to view your record.
We will publish the details in advance of which local schemes we are signing up to. A reasonable amount of notice will be given via notices posted in the surgery and on our website at http://www.theholliessurgery.co.uk
If you want to stop your data being seen by other local providers you should complete our data sharing preferences form.
3. Care.data (sometimes referred to under the headline ‘Better information means better care’).
This data sharing scheme was due to start in the Spring of 2014 but it has been postponed, possibly until next year, to allow the NHS to make changes in response to concerns that were expressed from many quarters at the time of its planned launch.
It is very different from the other two sharing schemes as it is not about enabling other clinicians who are looking after you to view your medical data.
Care.data is a programme by which medical data for every individual in the country is extracted from the GPs primary care databases and added to a national database where it is combined with information about you from hospitals and other social care services.
From there it can be analysed in order to improve the types of healthcare services that are put in place across the country. This data will also then shared with other third parties in an anonymised form. This is one of the areas that is being intensively reviewed before the programme is re-launched.
What happens if I do nothing? You will be assumed to have given implied consent for your information to be extracted from our database and also for it to be combined with other information the NHS holds about your treatment in hospitals and social care settings and given in an anonymised form and under strictly controlled conditions to other third parties.
If you want to stop your data being extracted from our system or if you would just like to stop it being shared outside the NHS Data Centre then you should complete the appropriate section of our data-sharing preferences form.
The Partners at The Hollies are encouraging all our patients to find out more about Care.Data by calling the NHS patient help-line 0300 456 3531 or by visiting www.nhs.uk and searching for ‘care.data’
Remember, Care.Data will not be starting until the Autumn 2014 at the earliest but whatever preferences you choose now will be retained against your record until you decide to change them. If you have already submitted an opt-out form for Care.Data, those settings will remain on your record.